rejoice with us. :)
last week missT had a follow-up appointment with her paediatrician. at her previous visit, we were finally able to start reducing the clonazepam. she was only taking 2.75mg / day but the effects were strong. with her head full of fog and all processes slowed to a dull roar, how can a kid learn? all she wanted to do was sleep! after a full night's sleep, she would start asking for a nap around 11 30 am and at 6 30 pm she would be begging to be in her pj's. how many 7 1/2-year-olds do you know like that?
the reduction begins..... and, for the first time in 2 years, she didn't ask for a nap in the afternoon. get this... we had only reduced it by .25mg. at that rate, it would take 11 months for her to be completely off the drug. (cold turkey could throw her back into seizures) a month later, after we had gone down yet another .25mg, she actually asked if she could 'please, stay up later.'
so, when we saw the Dr. last week, the first news was that the eeg missT had in july had come back with a 'significant improvement' and was 'normal.' as you can imagine, after 140 seizures in five years, most of them in the last two, i am about to burst!
i love what missT says about the eeg results: 'i am NORMAL!'
thank you, Jesus. (big sigh)
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